NORD (National Organization for Rare Disorders)

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NORD, along with its more than 280 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

Our Vision The vision that drives all NORD initiatives is:

A national awareness and recognition of the challenges endured by people living with rare diseases
A culture of innovation that supports basic and translational research to create diagnostic tests and therapies for all rare diseases
Access for all patients to the diagnostics and therapies that will extend and improve their lives
A regulatory environment that encourages development and timely approval of safe, effective diagnostics and treatments

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